Would you share your experiences so far with Toremifene (fareston)? What side effects have you experienced?

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member9403 (Survivor (1 year)) - 05 / 22 / 2012

It's hard to tease out what's being caused from what, but this medicine, I think is adding to my fatigue (which I'm still having a ton of just since treatment started period). I've also noticed it's playing with my moods. Basically it seems to take my emotions and magnify them. So I rarely just feel "okay." I'm not happy, I'm super happy. I'm not sad, I'm in tears. I'm not anxious, I'm on the verge of panic attacks. Also, I'm much quicker to anger. I rarely have felt angry in my life, and now I'm angry once a day! Although, it's still relatively new (I'm only in my second month of taking it) and it does seem to be tapering off a bit (thankfully!). The other thing is I'm having trouble sleeping, which started a few weeks after I started the medicine.

That said, I originally started with tamoxifen and had to go off of it because the side effects were beyond anything I decided I was able to live with. And the fareston is much kinder to me. And I feel these side effects are ones I can tolerate. Phew!
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