Engaged Patient

Empowerment through information is key. Provision of free community based education and educational meetings like our Women of Color conference are modalities that we have found successful. Reliable websites created by Komen, the American Cancer Society and the National Cancer Institute can be accessed in libraries and have information in Spanish. Cultural competency is also important. Services providers who share the same racial/ethnic background and language are also empowering.

I think that getting a second opinion is probably the most important thing you can do when you have been diagnosed. Because I did, I was able to learn so much more about the disease, my condition and my options. All physicians are different and approach patients differently. My first surgeon was great and told me the basics, but the second one was a research scientist and had all the latest statistics, treatments, and other information she shared with me. So different physicians can offer you different ideas, support and options.

The second opinion also serves to as a reinforcement of to processing the information. I say in my book that when you first hear the words, "You have cancer," your brain takes the next bus to Toledo. It is as if it shuts down, refusing to hear what has been said and therefore, you usually miss everything else that follows. During a second opinion, you are more stable and able to hear what is being said to you, allowing you to begin formulating a game plan.

And finally, it is, in my opinion, absolutely vital that you know for sure what you are dealing with. Different stages mean differnt things and information is power.