Advocacy

Developing my website was a little time-consuming. The initial set up was probably a couple of months and for me, about 30-40 hours most weeks during that time. This is what was entailed:


1. Deciding the tone/message/image I wanted to convey.

Eg., I wanted upbeat, self-empowering, and to have something to offer to survivors of any cancer type. The front page is for all survivors. It’s focus is nonclinical and on what we can do for ourselves in the way of diet, supplements, stress reduction. Organizations doing great things for us. Nonclinical, light, and sometimes funny. Many of the other tabs are for people with specific cancers and some of it is more clinical (treatments, diagnostics, etc).

After I had the tabs figured out, I wrote a few articles for each of the tabs, and found great sites where I could get free images to go with the stories. I also hired a graphic designer to work with me on my logo.


2. Actually setting up the site:

I contacted a survivor with a beautiful website who steered me toward a web developer who was good and in my price range. The designer in turn recommended a web host with a good, inexpensive product. Developing my website was a little time-consuming. The initial set up was probably a couple of months and for me, about 30-40 hours most weeks during that time. This is what was entailed:


1. Deciding the tone/message/image I wanted to convey.

Eg., I wanted upbeat, self-empowering, and to have something to offer to survivors of any cancer type. The front page is for all survivors. It’s focus is nonclinical and on what we can do for ourselves in the way of diet, supplements, stress reduction. Organizations doing great things for us. Nonclinical, light, and sometimes funny. Many of the other tabs are for people with specific cancers and some of it is more clinical (treatments, diagnostics, etc).

After I had the tabs figured out, I wrote a few articles for each of the tabs, and found great sites where I could get free images to go with the stories. I also hired a graphic designer to work with me on my logo.


2. Actually setting up the site:

I contacted a survivor with a beautiful website who steered me toward a web developer who was good and in my price range. The designer in turn recommended a web host with a good, inexpensive product.

Yes we do but at the health care system i go to alot of the Doctors don't know hardly anything about lymphedema. It has been an uphill struggle since diagnoses. I learned alot fast, and been told by Doctor's I was wrong, turns out they were. Have had to file complaints against a few. It's crazy!! Yes we do but at the health care system i go to alot of the Doctors don't know hardly anything about lymphedema. It has been an uphill struggle since diagnoses. I learned alot fast, and been told by Doctor's I was wrong, turns out they were. Have had to file complaints against a few. It's crazy!!