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Tobey
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| Communities: Breast Cancer | Thank You's: 4 |
| Member Since: Dec. 2011 | Top Answers: 6 |
| Questions: 3 | Answers: 6 |
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BRCA gene positive? Breast or Ovarian Cancer? Founder of NOT FOR PROFIT GROUP-for previvors and survivors! Read up! Join Up! Share us! http://bit.ly/tET2LU
http://www.previvorsandsurvivors.com
http://www.previvorsandsurvivors.com
Organization address:
Long Island, NY
, New York
Webpage:
http://www.previvorsandsurvivors.com
Twitter
https://twitter.com/brcainfo
Tobey Activities
Hi Nancy,
I always say you are not alone, come meet your sisters....
hugs & kisses...
I always say you are not alone, come meet your sisters....
hugs & kisses...
New answer by Tobey (Support Group (Verified)) in topic(s) Communication, Support, Breast Cancer, Emotional Support, Breast Reconstruction, Mastectomy, Patient Communication
5
Answers |
14 days ago
Tobey
Thank you for inviting me here today to answer questions. Great site Murray- keep up the good work.
Tobey
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26 days ago
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1 Reply
murray
Thank you @Tobey! Thank you for all of the support:)
murray
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26 days ago
Tough question...
I have to say that the most difficult issue is wondering how many other family members have inherited this gene mutation.
I deal with all issues in my life in a positive way. I am a very positive person & I ALWAYS look for the funny & the good in life.
I try to enjoy every day & help others. I love my friends & my family.
I have to say that the most difficult issue is wondering how many other family members have inherited this gene mutation.
I deal with all issues in my life in a positive way. I am a very positive person & I ALWAYS look for the funny & the good in life.
I try to enjoy every day & help others. I love my friends & my family.
New answer by Tobey (Support Group (Verified)) in topic(s) BRCA-1, Breast Cancer, BRCA Mutations, BRCA-2, Genetic Mutations, Ovarian Cancer
1
Answer |
26 days ago
This is the easiest question of all for me.
I was my mom's caretaker for 2 years. I literally went through her cancer diagnosis & treatment with her as well as taking her last breath with her.
When my next family member was diagnosed & we found out that we carried the BRCA gene mutation, in my mind it wasn't an if for me, it was a when.
I knew that I had to do everything that I could to not go down this road.(No woman in my family has lived past the age of 60.)
I knew that for me giving up my breasts & ovaries was my only choice with the odds stacked so high against me. In MY opinion taking prophylactic measures was far easier than the choices I would have to make if I developed one cancer cell.
I was my mom's caretaker for 2 years. I literally went through her cancer diagnosis & treatment with her as well as taking her last breath with her.
When my next family member was diagnosed & we found out that we carried the BRCA gene mutation, in my mind it wasn't an if for me, it was a when.
I knew that I had to do everything that I could to not go down this road.(No woman in my family has lived past the age of 60.)
I knew that for me giving up my breasts & ovaries was my only choice with the odds stacked so high against me. In MY opinion taking prophylactic measures was far easier than the choices I would have to make if I developed one cancer cell.
New answer by Tobey (Support Group (Verified)) in topic(s) Cancer Prevention, Oophorectomy, Patient Experiences, Patient Decisions, Patient Stories, Double Mastectomy, Breast Cancer Prevention, Breast Surgery, Ovarian Cancer Prevention, Surgery, Mastectomy
1
Answer |
26 days ago
Wow... that is one powerful question!
While I was going through my "previvor" experience, I was invited to join a group of women breast cancer survivors. Since I have the BRCA gene mutation, I have lived the breast cancer experience with my family members. I can certainly empathize with the breast cancer community, but those of us who have never heard the words: YOU HAVE BREAST CANCER are NOT the same.
This same group invited me to a luncheon that I happily attended to show my support & friendship.
When it was time to check in, I was asked if I was a survivor & I honestly said no. I was told that I could not sit with my group of friends.
At this point, I was just a blog with a huge following. I had over $2000.00 in donations in my purse to present.
Yes...I made the phone call to someone high up (who was expecting me) to tell them what was going on.
At this point, my someone met me, apologized profusely & I vowed that I would start our group for "people like me" and I did.
While I was going through my "previvor" experience, I was invited to join a group of women breast cancer survivors. Since I have the BRCA gene mutation, I have lived the breast cancer experience with my family members. I can certainly empathize with the breast cancer community, but those of us who have never heard the words: YOU HAVE BREAST CANCER are NOT the same.
This same group invited me to a luncheon that I happily attended to show my support & friendship.
When it was time to check in, I was asked if I was a survivor & I honestly said no. I was told that I could not sit with my group of friends.
At this point, I was just a blog with a huge following. I had over $2000.00 in donations in my purse to present.
Yes...I made the phone call to someone high up (who was expecting me) to tell them what was going on.
At this point, my someone met me, apologized profusely & I vowed that I would start our group for "people like me" and I did.
New answer by Tobey (Support Group (Verified)) in topic(s) Non-profit Organization, Non-profit, Survivor Stories
1
Answer |
26 days ago
Thank you for inviting me today to answer some questions.
Creating a 501(c)(3) was not as difficult as the decision to create & maintain one was. Once I made the decision to become a not for profit I just turned to professional advice. Accountant, attorney & a team of doctors, social workers & genetic counselors to turn to for help when needed.
I started the group with a personal donation of $25.00 to our checking account & I also made the personal donation of all start up costs.
previvorsandsurvivors.com is something I believe in & am commited to as it is a much needed group in our community.
I am now proud to say that we are a full fledged group with a caring board to help me help others.
Creating a 501(c)(3) was not as difficult as the decision to create & maintain one was. Once I made the decision to become a not for profit I just turned to professional advice. Accountant, attorney & a team of doctors, social workers & genetic counselors to turn to for help when needed.
I started the group with a personal donation of $25.00 to our checking account & I also made the personal donation of all start up costs.
previvorsandsurvivors.com is something I believe in & am commited to as it is a much needed group in our community.
I am now proud to say that we are a full fledged group with a caring board to help me help others.
New answer by Tobey (Support Group (Verified)) in topic(s) 501-c3 Organization, Non-profit Organization, Non-profit
1
Answer |
26 days ago
Tobey (Support Group (Verified)) asked the question in topic(s) Breast Cancer, Breast Cancer High Risk, Ovarian Cancer High Risk, Ovarian Cancer
1
Answer |
27 days ago
Tobey (Support Group (Verified)) asked the question in topic(s) Surgery Recovery, Breast Surgery, Surgery, Mastectomy, Massage, Breast Surgery Recovery
2
Answers |
27 days ago
Hi AnneMarie,
I would suggest that you call your genetic counselor. The genetic counselor knows your history & can advise you best..That's just MY OPINION!
xoxo Tobey
I would suggest that you call your genetic counselor. The genetic counselor knows your history & can advise you best..That's just MY OPINION!
xoxo Tobey
New answer by Tobey (Support Group (Verified)) in topic(s) Cancer Risk, Breast Cancer High Risk, Breast Cancer Risk
2
Answers |
27 days ago
Tobey (Support Group (Verified)) asked the question in topic(s) Breast Cancer Tests, HALO, Breast Cancer Screening, Breast Cancer Screening Tests, Cancer Screening Tests, Cancer Screening, HALO Test, BREVAGen Test
2
Answers |
27 days ago
Tobey
Hi to all. I work as a dental hygienist & I am the founder of http://previvorsandsurvivors.com/ We are a support group for people who have the BRCA positive gene for breast & ovarian cancer.
Sometimes my life gets insanely crazy, but I am always available to help someone. I can always be reached @ tobeyrdh@previvorsandsurvivors.com.
Looking forward to "meeting" & sharing with you all.
Be well...
Tobey
Sometimes my life gets insanely crazy, but I am always available to help someone. I can always be reached @ tobeyrdh@previvorsandsurvivors.com.
Looking forward to "meeting" & sharing with you all.
Be well...
Tobey
1 month ago
|
1 Reply
Tobey's Profile
Breast cancer questions and answers.
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