PreparedPatient

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The Prepared Patient® Forum is an interactive website, created and maintained by the Center for Advancing Health, designed to help people find good health care and make the most of it. The Forum offers a place for people to read and share experiences about seeking health care; it provides links to trusted and helpful resources; and it publishes the latest news about research related to the decisions people must make about their health and their care.

Organization address: 2000 Florida Avenue, NW Suite 210 Washington, DC 20009-1231 , DC 20009-1231
Contact phone: 202.387.2829
Twitter JessieGruman

PreparedPatient Activities
Social worker: Families in the ICU may benefit from talking to a clinical social worker, sometimes called a case manager. Social workers are trained to help with communication between medical team members and family. An ICU social worker may offer emotional support, provide referrals to community resources, assist with the transition out of the ICU and help families navigate the end-of-life decision making process.

Clergy/chaplains: Hospital clergy members provide emotional and spiritual support to ICU patients and their families. Some ICUs have their own dedicated chaplains; others have a hospital chaplain that serves patients and family in all hospital units.

To learn more about ICUs, check out our Prepared Patient Feature, "Cutting Through ICU Confusion," here:http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue8.cfm
New answer by PreparedPatient (Organization (Verified)) in topic(s) Hospital, Intensive Care Unit (icu)
Ask your loved one’s nurse if it’s okay to bring in pictures and comfort objects, like blankets and stuffed animals, to help them feel more at home. You may also want to offer to help with routine care, like combing hair, swabbing the mouth, massaging or putting lotion on their arms or legs.

To learn more about ICUs, check out our Prepared Patient Feature, "Cutting Through ICU Confusion," here:http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue8.cfm
New answer by PreparedPatient (Organization (Verified)) in topic(s) Loved Ones, Hospital, Communication, Intensive Care Unit (icu)
Doctors recommend that one family member act as a conduit for information between the rest of the family and the medical team. This person can write down everyone’s questions and speak with the medical team at a convenient time. Don’t be afraid to ask your doctor to explain if you don’t understand the terminology they are using. If you are having trouble communicating with your loved one’s doctors, you may want to talk to a social worker or case manager. The hospital may have a social worker on staff or be able to recommend one to you.

To learn more about ICUs, check out our Prepared Patient Feature, "Cutting Through ICU Confusion," here:http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue8.cfm
New answer by PreparedPatient (Organization (Verified)) in topic(s) Hospital, Communication, Doctor Communication, Intensive Care Unit (icu)
Talk to the ICU nurse. ICU nurses reassess pain regularly and administer medications as necessary, but it doesn’t hurt to advocate for your loved one.

To learn more about ICUs, check out our Prepared Patient Feature, "Cutting Through ICU Confusion," here:http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue8.cfm
New answer by PreparedPatient (Organization (Verified)) in topic(s) Hospital, Communication, Pain, Intensive Care Unit (icu)
Though policies vary from hospital to hospital, most ICUs allow you to visit someone during visiting hours. Children under the age of 14 may not be allowed because of the risk of infection and the potential for the child to be affected psychologically. Be aware that patients in the ICU may have bruising, swelling, bandages, catheters or tubes in the nose or mouth. Due to their illness or medications, patients may have trouble thinking or speaking clearly and may be disoriented, hostile or confused. While you are visiting, you may be asked to leave during certain medical procedures.

To learn more about ICUs, check out our Prepared Patient Feature, "Cutting Through ICU Confusion," here:http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue8.cfm
New answer by PreparedPatient (Organization (Verified)) in topic(s) Hospital, Hospital Visit, Intensive Care Unit (icu)
An intensive care unit (ICU), sometimes called a critical care unit, is a section of a hospital that cares for very sick patients. People who have experienced heart attacks, strokes, surgical complications and severe respiratory problems receive care in the ICU. The ICU also provides trauma care for those who've been severely injured in car accidents or from gunshot wounds, fires, falls or industrial accidents.

To learn more about ICUs, check out our Prepared Patient Feature, "Cutting Through ICU Confusion," here:http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue8.cfm
New answer by PreparedPatient (Organization (Verified))
Because the patients are so sick, intensive care units (ICUs) are busier than other hospital units. They may also have more ambient noise from machines and monitors. ICUs have more nurses, with each nurse only taking care of one or two patients. The layout is more open, so nurses can easily monitor patients; rooms may not have doors, or may only have three walls.

To learn more about ICUs, check out our Prepared Patient Feature, "Cutting Through ICU Confusion," here:http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue8.cfm
New answer by PreparedPatient (Organization (Verified)) in topic(s) Hospital, Intensive Care Unit (icu)
If you or a loved one is in the ICU (sometimes referred to as critical care), you'll come in contact with a variety of medical professionals. Here's a brief who's who:

Intensivist: Doctors who diagnose ICU patients and direct their care and treatment are called intensivists. Intensivists, also called critical care doctors, have specialty and subspecialty training in treating critically injured and ill patients. Intensivists usually work in the ICU full-time.

ICU nurse/critical care nurse: ICU nurses carry out the intensivist's plan of care. They monitor the patient, assess pain, administer medications and perform tasks such as placing tubes and managing equipment. They also work closely with families, explaining the patient's condition and care.

Nurse manager: The nursing unit manager, or charge nurse, oversees the nursing care in the ICU and assists the nurses when necessary.

Specialty physician: Depending on the reason for being in the ICU, a patient may see one or more doctors with extra training and knowledge about a specific organ or condition.

Pharmacist: Pharmacists prescribe medicine dosages for ICU patients. Like intensivists, ICU pharmacists have specialty training in prescribing medicines for critically ill and injured patients.

Therapist: Several types of therapists work with the critical care team. Respiratory therapists help ICU staff monitor the patient's breathing. Physical therapists work to minimize permanent disabilities. Occupational therapists in the ICU help patients to perform daily tasks independently.

For more about ICUs, check out our Prepared Patient Feature, "Cutting Through ICU Confusion," here:http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue8.cfm
New answer by PreparedPatient (Organization (Verified)) in topic(s) Hospital, Intensive Care Unit (icu)
Make sure to talk to your doctor about your supplements, since some supplements can interact with medications. Because doctors may not know about all supplement-drug interactions, you may also need to do your own research and pay close attention to any side effects. Do not take more of a supplement than is recommended, because many nutrients can be toxic if you take too much.

For more about vitamins and supplements, see our feature article:http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue4.cfm
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New answer by PreparedPatient (Organization (Verified)) in topic(s) Health, Health Supplements, Supplements, Diet, Nutrition
Herbs are plants that are commonly used as health supplements. Herbs are also used for flavoring, like mint, and may have medicinal qualities, such as aiding digestion.

For more about vitamins and supplements, see our feature article:http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue4.cfm
New answer by PreparedPatient (Organization (Verified)) in topic(s) Health, Health Supplements, Supplements, Diet, Herb, Nutrition
Yes, FDA regulations for vitamins and supplements are similar to FDA regulations for food products. Note that health supplements do not have to meet FDA standards for drugs, which are more rigorous and require extensive testing for safety.

For more about vitamins and supplements, see our feature article:http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue4.cfm
New answer by PreparedPatient (Organization (Verified)) in topic(s) Supplements, Vitamins, Regulation, FDA (Food And Drug Administration)
A mineral is a chemical element. Some minerals, like iron, are necessary for good nutrition and health.

For more about vitamins and supplements, see our feature article:http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue4.cfm
New answer by PreparedPatient (Organization (Verified)) in topic(s) Health, Diet, Mineral, Nutrition
A health supplement is anything taken to improve health and as an addition to daily meals and nourishment. Health supplements can include vitamins, minerals, herbs and botanicals.

For more about vitamins and supplements, see our feature article:http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue4.cfm
New answer by PreparedPatient (Organization (Verified)) in topic(s) Health, Nutrition, Health Supplement
Vitamins are certain chemical compounds that contain carbon and are essential for our nutrition and physical health.

For more about vitamins and supplements, see our feature article:http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue4.cfm
New answer by PreparedPatient (Organization (Verified)) in topic(s) Health, Vitamin, Nutrition
Remember that “natural” does not necessarily mean that a product is safe, and don’t rely on a single study or personal story to make your decision. Don’t assume that more is better, since many supplements can be toxic in high doses. At the same time, for some people, supplements can support nutrition especially when they are used to complement goals for a healthy diet.

Here are some online resources that may be helpful:
These three organizations all keep regularly updated fact sheets on the most commonly used herbs, supplements and vitamins.

The Office of Dietary Supplements:http://ods.od.nih.gov/factsheets/list-all
National Center for Complementary and Alternative Medicine:http://nccam.nih.gov/health/herbsataglance.htm
Memorial Sloan-Kettering Cancer Center:http://www.mskcc.org/mskcc/html/11570.cfm

U.S. Pharmacopeia aims to help ensure the quality, safety and benefit of medicines and foods:http://www.usp.org/
Consumer Reports Health regularly reviews supplements but may require a subscription for full access to information:http://www.consumerreports.org/health/natural-health/dietary-supplements/overview/index.htm
NSF International, a non-profit NGO, also is involved in testing and certification efforts:http://www.nsf.org/consumer/dietary_supplements/index.asp?program=DietarySup
ConsumerLab.com tests and reports on health and nutritional products:http://www.consumerlab.com/
Natural Products Association participates in quality assurance programs for supplements:http://www.npainfo.org/

For more about vitamins and supplements, see our feature article:http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue4.cfm
New answer by PreparedPatient (Organization (Verified)) in topic(s) Health, Health Supplements, Healthy Lifestyle, Nutrition
Great question, Murray! We would suggest making sure you know why you're going to a specific doctor and what you hope to accomplish at the appointment, and going from there. Our feature article, "The 'Handoff': Your Roadmap to a New Doctor's Care" (http://www.preparedpatientforum.org/organizing/handoff.cfm) offers some tips for planning and navigating a visit to a new doctor's office. The article recommends that patients take these steps:

Bring a list of all your medications, including herbal and over-the-counter remedies, to your first appointment with your new doctor.

Repeat back any instructions your new doctor gives you, to make sure you've understood them correctly.

Ask your doctor to demonstrate the use of any new devices he or she may prescribe for you.

If you have a family member or friend who helps take care of your health, bring them to your appointment.

Before you leave, ask about your next steps. Do you need to make other appointments? Do you need to share any information with your primary care doctor?

There may also be other medical records or information you need or want to have on hand, which you may want to consider ahead of time. There are also some general steps that are good to take before a visit to any doctor's office. Some general resources for preparing for doctors' visits can be found here:#Preparing" target="_blank">http://www.preparedpatientforum.org/patient411/communicate.cfm#Preparing

You may also find it helpful to review our article, "Your Doctor's Office, Demystified," which provides information about the different kinds of medical professionals found in many doctors' offices:http://www.preparedpatientforum.org/organizing/droffice.cfm

New answer by PreparedPatient (Organization (Verified)) in topic(s) Doctors Appointment, Patient Preparation, Doctor Visit, Preparation
Center for Advancing Health President and experienced patient Jessie Gruman says, "People need to realize that finding good health care and making the most of it relies mainly on their actions. We have to work at being informed about when to seek care and from whom and about what we have to do to make the most of the services, drugs and technologies that constitute our treatments."

If you'd like to know more about Jessie and her experiences as a patient, you can visit www.AfterShockbook.com.
Your doctor and your pharmacist can both provide advice about avoiding interactions between drugs and supplements. Make sure to tell them both about everything you're taking, including supplements and over-the-counter medications. Prepared Patient has two feature articles that may be helpful to you, "Vitamins & Supplements: Before You Dive In" (http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue4.cfm) and "Side Effects: When Silence Isn't Golden" (http://www.cfah.org/hbns/preparedpatient/Vol4/Prepared-Patient-Vol4-Issue2.cfm).
New answer by PreparedPatient (Organization (Verified)) in topic(s) Drugs, Herbals, Medications, Drug Interactions, Tips
That's a great question! Choosing a hospital is definitely important and can be tricky. Our Prepared Patient feature article on hospital report cards talks about different ways people choose hospitals and offers some tips:http://www.preparedpatientforum.org/finding/reportcards.cfm

Our Prepared Patient 411 also offers some resources:

Hospital rankings and ratings have become more widely available. Although you might not be able to freely choose a hospital if your doctor only has privileges in one place, your insurance only applies to certain facilities or if you can't travel far, it can be helpful to know whether there are any differences in the possibilities available to you.

American Cancer Society
Choosing a Doctor and Hospital
http://www.cancer.org/Treatment/FindingandPayingforTreatment/ChoosingYourTreatmentTeam/choosing-a-doctor-and-a-hospital

Consumers' CHECKBOOK is an independent, nonprofit consumer organization that provides consumers information to help them get high quality services and products at the best possible prices. They produce a National Guide to Hospitals that can be purchased for $22 from their site.
http://www.checkbook.org/hospital

HealthGrades offers free information on how over 5,000 hospital facilities rate on 28 common medical conditions or procedures. More detailed reports on individual hospitals, including safety ratings, the average length of stay in the hospital and cost of common procedures, are available for $9.95 and $2.95 for each additional report in one order.
http://www.healthgrades.com
(303) 716-0041

Hospital Compare is a service from the U.S. Department of Health and Human Services which allows you to search for Medicare-certified hospitals in your area. You can find out about how they rate in terms of quality care such as heart attack, heart failure and pneumonia compared to other hospitals nationwide (where performance data is available). In some cases, patient satisfaction and general medical care ratings are also provided. The site also allows you to compare up to three hospitals side-by-side.
http://www.hospitalcompare.hhs.gov

Quality Check is the Joint Commission's search engine to locate Joint Commission accredited health care organizations in the United States. You can search by city and state, by name or by zip code.
http://www.qualitycheck.org

The Leapfrog Group offers quality and safety ratings online for free. The ratings measure hospitals' performance in areas such as patient safety, technology, high risk procedures and intensive care, rather than specific procedures or diseases. Leapfrog uses information that hospitals report voluntarily, so their ratings may not be available for all hospitals in your area.
http://www.leapfroggroup.org
(202) 292-6713

US News America's Best Hospitals
http://www.usnews.com/besthospitals

(Source:http://www.preparedpatientforum.org/patient411/findingdecentcare.cfm#Choosing)
New answer by PreparedPatient (Organization (Verified)) in topic(s) Finding Medical Care, Best Hospitals, Tips, Hospitals
Be clear and persistent! A recent report in the New England Journal of Medicine found numerous studies showing that doctors often downgrade the severity of patients' self-reported symptoms, particularly when it comes to medication side effects. This is case when keeping a symptom diary can come in handy—specific data can help both you and your health care team.

For more advice about talking to your providers about symptoms, see our full-length feature article:http://www.cfah.org/hbns/preparedpatient/Vol3/Prepared-Patient-Vol3-Issue8.cfm
New answer by PreparedPatient (Organization (Verified)) in topic(s) Doctor Support, Symptoms, Physician, Conversations With Doctor, Patient Communication
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