PositivelyPat

(Survivor (2 - 5 years))
Communities: Breast Cancer Answers:  8
Member Since: Mar. 2012  
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Personal Bio (My story)
Survivor. Author of The Cancer Dancer: Healing-One Step at a Time.

I’m a 3-time Emmy winning TV producer dedicated to creating value and serving others. A published author, speaker & non-profit volunteer, I'm passionate about making a difference in people's lives.

I’m single (divorced). I have no kids, by design, but nurture everyone around me, especially my 4 cats (Tango, Chloe, Frankie and Pucci) and my dog Merlot. I’m into salsa music, spirituality and love our beautiful Mother Earth.

I’ve led a crazy busy non-stop life for years…until………..

On April 10th, 2008, I was diagnosed with breast cancer. As you would assume, the diagnosis shook my foundation and brought nearly all external life-processes and my busy life to a screeching halt. I saw my mom's life (and death) in front of me. She died of breast cancer 20 years prior at the age of 59. Grief, sadness and fear took over my entire body. In the moments after hearing the diagnosis, however, somehow I knew that this would be God’s way of helping me slow down, grow, reach my fullest potential as a human being and helps other through the sharing of my story.

It was in those moments early on that I realized I had the power to choose my attitude for how I would handle the situation. My instinct was to react as I usually do…looking at the glass as half full.

I tend to look for a silver lining, even in difficult situations. Fortunately, even in the midst of this journey.

We all know that we have only so much control over the events that take place in our lives. But what we DO have control over is how we respond to those events. The Dali Lama said it best: “Pain is inevitable. Suffering is optional.”

I have faith that everything happens as it does for a reason. When cancer hit me head on, I considered no option other than leaning into this difficult situation and learning what I was supposed to learn. If God’s will aligned with mine, I would survive cancer, use the healing journey as a time to reconnect with myself, set a new course for my life, and find more ways to help others with what I’ve learned.

This healing journey has led me to meet amazing people, including many beautiful, strong and courageous women. Organically some of us came together and formed a group called the “Link of Hope Sistas”. We’re all on the breast cancer journey together and when we gather we have fun…we inspire each other and learn from one another. That’s where Link of Hope was born.

I videotaped my journey beginning four hours after hearing the world "You have cancer". My goal: to help others on their journey through BC.

Discovery aired a one-hour documentary on my healing journey and I just released The Cancer Dancer - Healing: one step at a time. It is filled with more than 400 patient to patient and caregiver tips to make the journey easier for others.

As I always say, "Joy is a choice".
Personal Info
Location: Florida, Miami
Gender: Female
Number of children: 0
Ethnicity: White, Hispanic / Latin
Speaks: English (Fluently), Spanish (Fluently), Portuguese (Poorly)
Ask me about: breast cancer, Mastectomy, Breast Reconstruction Options, Chemotherapy, Positive Thinking, Finding Positives In Cancer
Health Bio (My Health Story)
I was diagnosed with Invasic Ductal Carcinoma in 2008.
It was stage 1, Grade 3.
I was Her2 Neu Positive.

I had a double mastectomy and one year of chemo:
Abraxine
Carbo Platin
Herceptin

Reconstruction with implants
Health Info
  • Disease: Breast Cancer
  • Stage of disease: Stage I
  • Cancer started in: milk ducts
  • Hormones: ER- ( estrogen receptor negative), PR- (progesterone receptor negative)
  • Types of breast cancer: Invasive (infiltrating) ductal carcinoma
  • Tumor grade: G3
  • Lymph nodes: no lymph nodes involved
  • Date of first symptom: 02/29/2008
  • Date of diagnosis: 03/31/2008
  • Recurrent: no
  • Initial Symptoms
  • Lump in breast
  • Tests
  • Mammogram
  • Breast physical exam
  • BRACA-1 / BRACA-2 Screen
  • Breast biopsy
  • Complete Blood Count
  • Bone scan
  • Breast MRI (magnetic resonance imaging)
  • Breast ultrasound
  • Breast x-ray
  • CAT Scan (CT - Computerized Tomography)
  • Her2/neu
  • Procedures/Surgeries
  • Mastectomy
  • Immediate Breast Reconstruction
  • Silicon Implants
  • Medications and Treatments
  • Abraxane (Paclitaxol)
  • Carboplatin (Paraplatin)
  • Taxotere (Docetaxel)
  • Trastuzumab (Herceptin)
  • Side effects from medications/treatments
  • Taste and smell changes
  • Vaginal Dryness
  • Weakness
  • Weight changes
  • Cold and flu symptoms
  • Diarrhea
  • Dry mouth
  • Dry skin
  • Fatigue
  • Hair loss and Changes
  • Insomnia (Trouble Sleeping)
  • Memory loss
  • Mouth and Throat Sores (Myalgias)
  • Nausea
  • Nose bleeds
PositivelyPat Activities
Post treatment. During treatment I knew exactly what I needed to do and when. I was surrounded by people who loved me. There was a plan of action and I was on it. Afterwards, you are left with a new normal. People go back to their daily lives. I'm still learning this new dance, but I will say that I accept every day...as a gift and I do my best to enjoy every single moment and live with purpose.
New answer by PositivelyPat (Survivor (2 - 5 years))
I didn't have a husband or boyfriend at the time. My mom passed away from breast cancer and I'm an only child. So the support came from my dad and stepmom and the rest of my family...but especially my girlfriends who were there with me, 24/7 for an entire year. They are my angels. One of my greatest lessons on this journey was to learn to accept. It's tough sometimes for women, who are used to doing and being for everyone else. Now...I give...as easily as I received. It's a beautiful thing.
New answer by PositivelyPat (Survivor (2 - 5 years))
There were many things I wished I knew before as far as ways to feel comfortable in the midst of treatment. But since I received chemo for one year, I eventually learned more and more. Such as...when you lose you hair, buy a silk pillow case...it eases the pain that you sometimes feel on your head when you lay down. I learned so many things that help ease the journey, which is why I wrote the book The Cancer Dancer: Healing One Step at a Time. It's filled with more than 400 patient-to-patient tips for anyone going through cancer.
New answer by PositivelyPat (Survivor (2 - 5 years))
I think it's when I spoke in front of 1000 breast cancer patients/survivors, healers and caregivers. It was at an event called Day of Caring. I was the Keynote speaker...I showed a video of my journey and I truly just bared my soul and my heart. Connecting with that amazing audience...was something that I will never forget. There were so many beautiful souls in that room, who had also traveled the same path. It was magical.
New answer by PositivelyPat (Survivor (2 - 5 years))
PositivelyPat     Dr. Khouri is the innovator and expert in NATURAL breast reconstruction WITHOUT major surgery. He uses an external expander and your own fat to rebuild the breast(s) taken away by cancer. Today he answers your questions on this link. Please pass on to all you know. What he does is truly AMAZING. http://talkabouthealth.com/RogerKhouriMD
1 year ago  |  1 Reply
murray     Thank you for sharing, what a fantastic option for breast reconstruction!
1 year ago
To learn from one another. One of the things that I learned is that patient-to-patient tips and advice is extremely helpful. What doctors have to say is critical, of course. But unless you've gone through it yourself...well...it's not the same.

I connect to other breast cancer patients/survivors through social media all the time. I learn from them. They learn from me.

I have a page myself where we've built an on-line community of people who care about health and wellness. A large bulk of those are breast cancer survivors. Join us: It's on Facebook and it's called Positively Pat.

I also have my website: www.PositivelyPat.com and I just released a book that is actually filled with more than 400 patient-to-patient and caregiver tips. It took me 3 years to write and gather the information...I hope it helps many. :)
New answer by PositivelyPat (Survivor (2 - 5 years))
I had immediate reconstruction. There was no reason not to. I had implants...which I am ok with. HOWEVER....I later learned about a about a 3rd option for breast reconstruction. Dr. Roger Khouri at the Miami Breast Center builds ENTIRE breasts from your own fat. He can do it at the time of your mastectomy or after.

I've met dozens of women who have had this done. It's incredible. No scars. No incisions. No foreign objects in your body. No traumatic surgery (it's all done with little needles and lipo). AND women keep near-normal sensation in their breasts (something I'll never have). Check him out:
www.MiamiBreastCenter.com
I had implants because I didn't know any better. Since then I've learned about a 3rd option for breast reconstruction. Dr. Roger Khouri at the Miami Breast Center builds ENTIRE breasts from your own fat.

I've met dozens of women who have had this done. It's incredible. No scars. No incisions. No foreign objects in your body. No traumatic surgery (it's all done with little needles and lipo). AND women keep near-normal sensation in their breasts (something I'll never have). Check him out:
www.MiamiBreastCenter.com
New answer by PositivelyPat (Survivor (2 - 5 years))
PositivelyPat     Joy is a choice.
1 year ago  | 
Positive thinking: Everything happens for a reason. I call chemo "Sacred Juice". Others may laugh, but chemo healed me, so that makes it sacred. :)

Learn to receive: A big lesson for women.
New answer by PositivelyPat (Survivor (2 - 5 years))
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