My choice was solely based on peace of mind,although my right breast was never infected. I had four tumors and lymph node infected on the left side. For me, it made more sense to reduce the amount of breast tissu available to make sure I had less chances of recurrence. Was I right? I hope so. Anyway, I don't stay up at night wondering if I should have. That way, I feel like I have done everything in my power to make sure it wouldn't come back. Being only 34 at the time of the diagnostic and with two toddlers, it was the only choice that made sense. I choose the live and not having to go through this again. Besides, doing it both sides helped to facilitate reconstruction, which was not a small benefit! :)
Yes, as you mentioned Dr. Paul Goss presented the findings on exemestane for breast cancer prevention at ASCO and his group published their findings in the New England of Medicine in June 2011. Like many new findings it may take a while to catch on especially for chemoprevention, as the other options (tamoxifen, raloxifene) have not been popular with either the breast specialists or the patients due to the side effects (menopausal symptoms, blood clots, uterine bleeding, endometrial cancer, cataracts, etc). Asking healthy patients to take medications with minimal or serious side effects can be a hard sell.
Most women choose close surveillance, seeing their breast specialist twice a year for breast examinations along with screening. In addition to that, you may be referred for chemoprevention or hormonal treatment such as tamoxifen or if post-menopausal (raloxifene, exemestane). It is not necessary to have a mastectomy for ADH alone.